28 September, 2009

Objectivity: Its Uses and Abuses

A few months ago (I know it's, like, FOR-EV-ER in internet time, but bear with me, because as I have already explained, I can't update often because of various issues), Amandaw did a series of guest posts at Feministe, and--similar to what happened when she guest-posted last year--people kind of missed the point, and in some cases, did this rather spectacularly, by accusing her of not being "objective" enough in listening to criticism, among other things.

Here's the thing: Objectivity is absolutely, awesomely useful in many areas. The natural and physical sciences are just two areas where it is, understandably, required; quantitative studies in the Humanities are also useful to those of us who do scholarly work in that field.

But when you have such an e-boner for OBJECTIVITY in everything ever that you have to steamroll over peoples' experiences because you have an expert platform from which to do so, and your commentariat feels the need to pipe up about how they, too, have had similar experiences with PWDs and their goddamn bitching and why can't PWDs be more objective?!, then there is a bit of a problem. Specifically, when the entire point of someone's post is how a possible piece of legislation will impact those who need the proposed banned substance the most, being rabid about OBJECTIVITY is probably not the best strategy to take. Personal experience is subjective, and if you insist on screeching OBJECTIVITY OBJECTIVITY WHY CAN'T YOU BE REASONABLE, you are missing the entire point. The whole aim of Amandaw's post on the proposed Percoset and Vicodin ban was to demonstrate exactly why it is (and was) such a terrible idea--using her personal experience as someone with chronic pain to make her point.

If you're going to read the above-linked Skepchick post, I would suggest doing so with caution; one reason why I did not cover this when it happened was because I could not read the above thread without getting extremely upset. I'm going to get slammed for this, because it is not OBJECTIVE enough, but I still can't read through it without getting upset. Here is just a taste of the delightful comments following the post:



[Ridiculous comment by this person; macro by me, because I watched Aliens the other night for approximately the 443rd time.]

Before anyone goes all BUT THEY ARE EXAMINING IT **OBJECTIVELY**, STOP TAKING IT PERSONALLY-robotic on me, please remember: there is no way that I can not take it personally; many of the comments there are hateful toward people with chronic pain, or with disabling chronic pain. If you know anything about disability rights, or anything about social justice, or marginalized groups versus the majority, or even a very basic concept like privilege (and no, the "PWD privilege" argument in the above post is most definitely not what I am talking about here), you will see why this is not good. It does not matter if you hide your contempt for PWDs and chronically ill people behind the guise of OBJECTIVITY--you are still hiding your contempt (and just barely, I might add).

Tell me I'm wrong, skeptical people. Tell me that a (young) disabled feminist atheist like myself has a place in the movement, and not just in the young-white-cute-steamrollering-privileged-feminist subset of the skeptical movement. I wish I could see a place for myself in the movement, but right now, I really can't.

Obligatory, non-OBJECTIVE Disclaimer: This blog is a SAFE SPACE for people with disabilities and chronic illnesses, including chronic pain. If you're going to leave a comment about how one of my responses makes my entire blog/opinion moot, or how people with disabilities need to accommodate non-disabled people in attitude, openness, or helping ABs process their feelings, or that I'm too angry/emotional, or that you, as an able-bodied person, can totally relate and here's a long comment detailing exactly how, please remember that such a comment might not be taken in good faith, and that I might be a jackass to you in return.

27 September, 2009

Autism Speaks Says: People With Autism Cannot Speak For Themselves

So this Autism Speaks video, made by once-awesome director Alfonso Cuaron and talentless hack "singer-songwriter" Billy Mann, is REALLY problematic and upsetting.



Yeah, implying that autism is always dangerous and horrible and will ruin your family and bankrupt you, and that your child who has autism is not really a person, but has been "taken over" by the condition...that's a great strategy.

It's fairly telling that the children and families shown in this video do not get to speak for themselves; nope, the creepy man-voice of "autism" speaks for them--as does this "charitable" organization.

I'd heard several times that Autism Speaks was/is fucking sketchy, but this is beyond the pale. Tigtog has more on this and why it is problematic.

17 September, 2009

Obligatory NIIAW Post

So, it's National Invisible Illness Awareness Week.

As with all of my disability-related posts, the following applies: This blog is a SAFE SPACE for people with disabilities. If you're going to leave a comment about how one of my responses makes my entire blog/opinion moot, or how people with disabilities need to accommodate non-disabled people in attitude, openness, or helping ABs process their feelings, or that I'm too angry/emotional or not "objective" enough, or that you, as an able-bodied person, can totally relate and here's a long comment detailing exactly how, or that you are concerned about the tone of my post, or that I should "just try" this miracle supplement that totally cured your brother's guy friend's drinking buddy's co-worker, please remember that such a comment might not be taken in good faith, and that I might be a jackass to you in return.

1. The illness I live with is: Fibromyalgia

2. I was diagnosed with it in the year: 2007

3. But I have had symptoms since: 2006

4. The biggest adjustment I’ve had to make is: Not being so hard on myself, and also not having too many commitments.

5. Most people assume: That being young means that you cannot have serious health problems, or that I am not "really" disabled. DISABILITY POLICE! WEE OO WEE OO

6. The hardest part about mornings is: Combating joint stiffness

7. My favorite medical TV show is: House

8. A gadget I couldn’t live without is: My iPod

9. The hardest part about nights is: Falling asleep without tossing and turning!

10. Each day I take 1 pills & vitamins. [Cymbalta]

11. Regarding alternative treatments I: have tried two that did not work (hypnosis, vitamins) and one that has worked (acupuncture)

12. If I had to choose between an invisible illness or visible I would choose: I don't know

13. Regarding working and career: Thank FSM that I got financial aid for grad school, because having a job at this point is out of the question.

14. People would be surprised to know: That I'm not as mean in real life as I sound on the internet. No, seriously.

15. The hardest thing to accept about my new reality has been: Peoples' stupidity is harder to deal with than the actual physical pain.

16. Something I never thought I could do with my illness that I did was: Stand up for myself.

17. The commercials about my illness: Bug the SHIT out of me. Since when can someone with fibro write in perfect cursive? Also, the way that the actors in the ads pronounce "fibromyalgia" makes it sound like a vegetable, not an actual medical condition.

18. Something I really miss doing since I was diagnosed is: Playing guitar :(

19. It was really hard to have to give up: Being able to stay up past 11 PM or so

20. A new hobby I have taken up since my diagnosis is: Cooking!

21. If I could have one day of feeling normal again I would: Go see a movie, go shopping, and then go out to eat, because I would be thrilled to be able to do all three in one day without getting exhausted.

22. My illness has taught me: That a lot of people are pretty stupid and subscribe to "if I can't see it, it isn't there/doesn't exist" thinking, but also that illness affects people of all gender identities, races, ethnicities, ages, sexualities, and class backgrounds.

23. Want to know a secret? One thing people say that gets under my skin is: "You should try positive thinking!" Thanks, dipshit.

24. But I love it when people: Are not afraid to admit that there are things about disability that they don't know, without also expecting that I'll play the role of Magical Disabled Person Who Teaches Them a Lesson About Life.

25. My favorite motto, scripture, quote that gets me through tough times is: "Tomorrow might be better."

26. When someone is diagnosed I’d like to tell them: It's not the end of the world

27. Something that has surprised me about living with an illness is: That people say similar ridiculous things, and that some people keep suggesting "cures" even if I've rebuffed their suggestions before.

28. The nicest thing someone did for me when I wasn’t feeling well was: It's the little things, mostly--asking if I need a break, need to sit down, if there's anything he/she can do, et cetera.

29. I’m involved with Invisible Illness Week because: Awareness just isn't enough; in some cases, it breeds complacency.

30. The fact that you read this list makes me feel: Thankful that I have so many friends who will put up with me!

Find out more about National Invisible Chronic Illness Awareness Week and the 5-day free virtual conference with 20 speakers Sept 14-18, 2009 at www.invisibleillness.com